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Top : Health : Support_Groups : Conditions_and_Diseases : Facial_Differences : Cleft_Lip_and_Palate
  • Popliteal Pterygium Syndrome@

    See Also:

    Sites:
  • American Cleft Palate/Craniofacial Association (ACPA)/Cleft Palate Foundation: Information and support from this newly combined organization.
  • Born to be Cleft: Personal story of what it was like having been born with this disorder.
  • Charleston Clefts, Inc.: Features personal accounts from individuals, parents, and practitioners.
  • Childrens Hospital Los Angeles: Describes the work of the reconstructive team in the Division of Plastic Surgery.
  • Cleft Lip and Cleft Palate: Explains their causes, treatment, and effect on a child's life.
  • Cleft Advocate: Provides education, inspiration, support and understanding for parents and families. Also offers insurance and advocacy information.
  • Cleft Lip & Palate Association: Information on services and advice offered by this UK association.
  • Cleft Lip and Palate: Concise factsheet on causes, symptoms and treatment of cleft lip and palate.
  • Cleft Lip and Palate: Read about this birth defect, learn why it happens, and find out how it can be prevented.
  • Cleft Lip and Palate: Explains the research conducted at the Division of Medical Genetics at the University of Texas. Affected families are invited to participate in the study.
  • Cleft Lip and Palate Association of Ireland: An Irish voluntary group providing support and information for parents of children with cleft lip and palate and those directly affected.
  • Cleft Lip Repair: A complete cleft repair procedure and illustrations, as authored and performed by Dr. John M. Lore.
  • Cleft Notes: Site dedicated to families with cleft born children. Pictures of bilateral cleft and submucous palate repair progression along with medical and personal information.
  • Cleft-Chat and Smile: An on-line support group for parents of children born with cleft lip and/or cleft palate.
  • CleftClub.com: Support group for affected people, their relatives and friends. Includes message boards, mailing lists, pictures, live chat, link directory, podcast, and personal experience database.
  • CleftPALS QLD INC.: Australian support group that provides information and help for families with a cleft child.
  • Common Congenital Disorders-Cleft Lip: From the Pediatric Plastic Surgery & Craniofacial Associates site, this provides basic cleft lip and palate information, along with before and after pictures.
  • Emily's Story: Emily was born with cleft lip and palate on April 15, 2004. This site chronicles Emily's treatment, recovery and day to day progress with specifics on using nasoalveolar molding (NAM) device prior to surgery.
  • Final Operations (Cleft Lip/Palate) -- John B. Mulliken: John B. Mulliken, M.D. discusses final operations related to teeth, lip scars and nose, for teenagers with cleft lip/palate.
  • Left Clip Club for Older Children and Teenagers: A place for older children and teenagers affected by cleft lip and/or cleft palate to communicate and share ideas. Organised by the Cleft Lip and Palate Association (UK).
  • Living With Cleft Lip and Palate: One woman's journey to adulthood with cleft lip and palate. Contains support and information links as well as a forum for discussion with others who are faced with clefts.
  • Maryland Society for Cleft Lip and Palate Children: For children with cleft lip/cleft palate and their families and friends.
  • Operation Rainbow: Registered Canadian charity oversees volunteer medical teams providing free reconstructive surgery to children in under-served countries with cleft lip, palate, and burn scars
  • Prescription Parents: Articles and links for parents of children born with cleft lip/cleft palate.
  • Smiles: Cleft lip and palate support group providing help on craniofacial issues and an overview of cleft palae management
  • Speech and Cleft Lip/Cleft Palate: Find out more about the speech therapy for a child with cleft lip and/or cleft palate.
  • The Great Ormond Street Branch of the Cleft Lip And Palate Association: This site provides information on the committee members, fundraising events and achievements of the Great Ormond Street Branch of the CLAPA.
  • The Smile Train: An international charity that provides surgery to those in need, as well as providing training to doctors in the region. Includes news, photograph gallery, and project details.
  • Transforming Faces Worldwide: A charity supporting cleft lip and palate management around the world.
  • Velopharyngeal Insufficiency: This article addresses the indications and remedies for velopharyngeal insufficiency in cleft-affected patients.
  • Wide Smiles: Cleft Lip and Cleft Palate Resource. Includes mailing list, webring, photo gallery and a huge collection of resource articles.


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