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Top 20 Directory:
Top : Health : Support_Groups : Conditions_and_Diseases : Facial_Differences
  • Apert Syndrome
  • Cleft Lip and Palate
  • Craniosynostosis
  • Langer-Giedion Syndrome
  • Parry-Rombergs Syndrome
  • Smith-Magenis Syndrome@
  • Stickler's Syndrome
  • Treacher Collins Syndrome

    Sites:
  • AboutFace: International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
  • Acne Support Group: Information and support on acne, including top ten tips, beauty tips and problems.
  • Beneath the Surface: Offers support and understanding to individuals of facial difference.
  • Birthmark Support Group: From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
  • Cancer Of The Eye Linkline (CELL): UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
  • Changing Faces: UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
  • Children's Craniofacial Association: Dedicated to improving the quality of life for facially disfigured children and their families; addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions.
  • Crouzon's Bridge of Hope Foundation: Bridging the gap between hope and knowledge for those suffering with Crouzon Syndrome.
  • FACES: The National Craniofacial Association: Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
  • Foundation for Faces of Children: Expert information for families and health care professionals about craniofacial conditions.
  • John Hopkins Center for Craniofacial Development and Disorders: Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
  • Let's Face It USA: A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
  • Moebius Syndrome: Moebius Syndrome support, information and resource site.
  • Sincere Meditations: Born with a severe facial disfigurement, David Roche has turned his "flaw" into a source of strength and he brings this to his audiences.
  • Support Works Online: Resources to find or form support groups related to facial difference. Information on medical research.
  • The Craniofacial Society of Great Britain and Ireland: Information about the society, which is a multidisciplinary forum for specialists.
  • The DRM WebWatcher: Facial Differences: A Disability Resources monthly guide to online resources about craniofacial differences.
  • The New Face Foundation: A non-profit corporation that treats children born with facial and craniofacial deformities such as cleft lip and cleft palate.
  • The Personal Side of Craniofacial Differences: Personal accounts of living with craniofacial conditions, and related webrings.
  • XP Support Group: UK-based organisation giving support, help and information to those affected by xeroderma pigmentosum and other photosensitive conditions.


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