Cornea and External Diseases - Cystinosis: Features photographs of an affected eye, information on clinical features and treatment.
Cystinosis Central: Information about this disorder, conferences, data for physicians, updates and links.
Cystinosis Clinical Resources: Portal features annotated links for health professionals.
Cystinosis Foundation: Includes brochures, FAQs, medical exchange, research, and a message forum as well as details about the organization and its events, conferences and fund raising.
Cystinosis Research Foundation: Natalie's Wish is a non-profit organization. Their mission is to fund research to find better medications and ultimately a cure for this condition.
Cystinosis Research Network: Information about the organization and their mission. Extensive database about the disease as well as support groups, research and links to other resources.
EyeRounds.org: Cystinosis: Doctors Andrew Doan and Andrew Lee describe the diagnosis of a young girl with the condition. Features information on the epidemiology, signs, symptoms and prescribed treatment.
The Cystinosis Foundation UK: Charity dedicated to assisting those with Cystinosis, their families, medical researchers and increasing the awareness of this condition.