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Top : Health : Conditions_and_Diseases : Nutrition_and_Metabolism_Disorders : Inherited : Mucopolysaccharidoses : Hurler_Syndrome
Sites:
  • It's me, Micol: An imaginative personal account written by a parent telling the story of a child's experiences growing up with MPS. Originally written in Italian, it has an English equivalent.
  • Jenna Marie's Page: The story of Jenna Marie who was born with MPS in 1997. Features updates on her condition and highlights of her life.
  • MedlinePlus Medical Encyclopedia: Hurler syndrome: Information about Mucopolysaccharidosis type I (MPS I), also known as Alpha-L-iduronate deficiency. Outlines the basic facts such as symptoms, treatments, and prognosis.
  • Obviously Grace: A mother writes about her experience as a mother of a child who had a form of MPS and died at age eight.
  • Tyler's Room - Hurler Syndrome: Information on the disease and Tyler's story. Includes an autopsy report.


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