eMedicine: Fabry Disease: University of Texas MD describes symptoms, treatment, and prognosis for patients suffering with this rare but severe lysosomal disorder.
Fabry Community: Provides information and support for people with Fabry disease, their caregivers and families, and their health care providers.
Fabry Disease Registry: Information about an ongoing observational database that tracks the natural history and clinical outcomes of patients with this disease.
Fabry Disease: Facts for Patients and their Families: The Mount Sinai School of Medicine provides information about symptoms, diagnosis, management, and enzyme replacement therapy. Register for the International Center for Fabry Disease mailing list.