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Top 20 Directory:
Top : Health : Conditions_and_Diseases : Neurological_Disorders : Spinal_Cord : Spinocerebellar_Degenerations : Friedreich's_Ataxia
See Also:

Sites:
  • CajunHeart: Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
  • Friedreich Ataxia Research Association: Summarises recent progress in ataxia research and the search for better treatment.
  • Friedreich's Ataxia and I: The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs.
  • Friedreich's Ataxia Fact Sheet: A comprehensive resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
  • Friedreich's Ataxia Parents Group: With advice for new parents on the the disease, and on how the parent might better cope emotionally.
  • Friedreich's Ataxia Research Alliance: Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.
  • Friedreichs Ataxia Society Ireland: Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
  • GeneClinics: Friedreich Ataxia: An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
  • Matt's Mansion: Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
  • NORD: Friedreich's Ataxia: Offers the synonyms, a general discussion and further resources.
  • Not Going Quietly: Comprehensive personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
  • Patient loses right-to-food fight: The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
  • Swiss Association of Friedreich Ataxia: Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.


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