| Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program: Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis. |
| Danielle's Website: Personal story of a child who has the condition, Tuberous Sclerosis. Contains links and photos. |
| Information and support for persons affected by Tuberous Sclerosis Complex in Canada.: Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections. |
| Kolten's Tuberous Sclerosis Page: Describes his seizures and surgery. |
| Matthew's Site for Tuberous Sclerosis Awareness: Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories. |
| National Library of Medicine: A list of synonyms, a summary and major features of tuberous sclerosis. |
| NORD: Tuberous Sclerosis: Offers alternative names, a general discussion and further resources. |
| Pediatric Oncall- Tuberous Sclerosis: Offers commonly asked questions about this disease. |
| Team Tamara: Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates. |
| Tuberous Sclerosis: A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
| Tuberous Sclerosis - Lisa's Site: An incurable genetic condition that causes tumors to grow in various places in the body. |
| Tuberous Sclerosis Alliance: US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families. |
| Tuberous Sclerosis Association: UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition. |
| Tuberous Sclerosis Fact Sheet: Developed by the National Institute of Neurological Disorders and Stroke (NINDS). |