Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program: Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
Danielle's Website: Personal story of a child who has the condition, Tuberous Sclerosis. Contains links and photos.
Information and support for persons affected by Tuberous Sclerosis Complex in Canada.: Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
Kolten's Tuberous Sclerosis Page: Describes his seizures and surgery.
Matthew's Site for Tuberous Sclerosis Awareness: Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
National Library of Medicine: A list of synonyms, a summary and major features of tuberous sclerosis.
NORD: Tuberous Sclerosis: Offers alternative names, a general discussion and further resources.
Pediatric Oncall- Tuberous Sclerosis: Offers commonly asked questions about this disease.
Team Tamara: Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
Tuberous Sclerosis: A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Tuberous Sclerosis - Lisa's Site: An incurable genetic condition that causes tumors to grow in various places in the body.
Tuberous Sclerosis Alliance: US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
Tuberous Sclerosis Association: UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
Tuberous Sclerosis Fact Sheet: Developed by the National Institute of Neurological Disorders and Stroke (NINDS).