| Elizabeth's Page: Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life. |
| Families of SMA (Spinal Muscular Atrophy): International support group and resource center for this disease, includes current research. |
| Families of Spinal Muscular Atrophy Canada: Canadian charity supports research into a cure for SMA. |
| FightSMA: Web site promoting public awareness for spinal muscular atrophy. |
| GeneClinics SMA Information Page: Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing. |
| Ilsa's SMA Resources: A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa. |
| NINDS Kennedy's Disease Information Page: Compiled by the National Institute of Neurological Disorders and Stroke. |
| Our SMA Angels: Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting. |
| SMA Angels Support Site: A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman. |
| SMA Support Inc.: A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA. |
| SMA2 Ian Paul: I am two years old and I have SMA2. |
| Spinal Muscular Atrophy Foundation: Information on SMA, and the latest updates in research, treatment and funding. |
| The Sean W. Venezia Foundation: Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I. |
| Theo's Story with SMA: A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French. |
| Tori's Buddies: Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA. |
| Washington University of St. Louis: Neuromuscular: Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical. |
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