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Top 20 Directory:
Top : Health : Conditions_and_Diseases : Neurological_Disorders : Muscle_Diseases : Muscular_Dystrophies : Support_Groups : Chats_and_Forums
See Also:

Sites:
  • MD-List: Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
  • Christians With Duchenne Muscular Dystrophy: Mailing list for Christians who have Duchenne Muscular Dystrophy.
  • DMD Support List: Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
  • Duchenne Muscular Dystrophy Support eGroup: International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
  • Dysferlin: Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
  • FSH Friends Forum: Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
  • FSH Muscular Dystrophy: Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
  • Limb Girdle Muscular Dystrophy: Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
  • MDA All the Way: Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
  • Muscle Disease: Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.
  • Myotonic Dystrophy 2: Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
  • PROMM (Proximal Myotonic Myopathy): Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.
  • The Muscular Dystrophy Forum: An online support group for people affected by any neuromuscular condition.


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