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Top : Health : Conditions_and_Diseases : Neurological_Disorders : Muscle_Diseases : Muscular_Dystrophies
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    Sites:
  • A Guide for Parents: This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
  • Becker Muscular Dystrophy Information Exchange: Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
  • DMD Information: Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
  • DMD Information and Resources for Teachers: Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
  • DMD Pioneers: Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
  • Duchenne/Becker Muscular Dystrophy: Includes key facts and animated slide shows of causes, diagnosis and treatment.
  • Duchennes: Provides links to medical and non-medical organizations and people with Duchennes problems.
  • FSH-MD Support Group: Provides support for those with Facio Scapulo Humeral and their carers.
  • General Practice Notebook - Duchenne muscular dystrophy: Clinically-oriented information.
  • Living For Today, Preparing For Tomorrow: Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
  • MDA Ride For Life: Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
  • Muscular Dystrophy Campaign: Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
  • National Registry of Myotonic Dystrophy and FSHD Patients and Family Members: Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
  • NINDS Muscular Dystrophy Information Page: Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).


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