| American Syringomyelia Alliance Project Inc: Aims to improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders. |
| Ghetto River Nymph: Online blog from sufferer of syringomyelia. Includes links to related organizations |
| Information on SM/ACM: Information, stories and online support forum for people who have either Syringomyelia, Arnold Chiari Malformation or both. |
| Living With It: Website written by a Syringomyelia suffer. Contains online forum, information on the condition, links to associations. |
| NINDS: Syringomyelia: Information sheet compiled by the National Institute of Neurological Disorders and Stroke. |