American Syringomyelia Alliance Project Inc: Aims to improve the lives of persons affected by syringomyelia, Chiari malformation and related disorders.
Ghetto River Nymph: Online blog from sufferer of syringomyelia. Includes links to related organizations
Information on SM/ACM: Information, stories and online support forum for people who have either Syringomyelia, Arnold Chiari Malformation or both.
Living With It: Website written by a Syringomyelia suffer. Contains online forum, information on the condition, links to associations.
NINDS: Syringomyelia: Information sheet compiled by the National Institute of Neurological Disorders and Stroke.