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Top 20 Directory:
Top : Health : Conditions_and_Diseases : Neurological_Disorders : Congenital_Anomalies : Anencephaly
See Also:

Sites:
  • Anencephaly - Jessicas Journey: A parent's personal experience, relating her daughter's story.
  • Anencephaly Awareness: Information including possible causes and future prevention. Also a personal story.
  • Anencephaly Information: Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
  • Anencephaly Net: An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
  • Anencephaly Support Foundation: Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.
  • Carrying to Term Pages: Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.
  • Faith Aminah Shabazz: Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003.
  • Moral Principles Concerning Infants with Anencephaly: Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
  • Mourning Mommies: Online support group for women who have lost babies to anencephaly.
  • NINDS: Anencephaly: Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
  • Yahoo! Groups: Anencephaly: Global Health Network support group open to anyone affected by anencephaly.
  • Yahoo! Groups: Anencephaly Blessings from Above: A Christian pro-life support group for parents those carrying to term.


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