| Anencephaly - Jessicas Journey: A parent's personal experience, relating her daughter's story. |
| Anencephaly Awareness: Information including possible causes and future prevention. Also a personal story. |
| Anencephaly Information: Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.] |
| Anencephaly Net: An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites. |
| Anencephaly Support Foundation: Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals. |
| Carrying to Term Pages: Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this. |
| Faith Aminah Shabazz: Personal story after a diagnosis of anencephaly while still in the womb. Faith was born in March 2001 and lived until October 2003. |
| Moral Principles Concerning Infants with Anencephaly: Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.). |
| Mourning Mommies: Online support group for women who have lost babies to anencephaly. |
| NINDS: Anencephaly: Information sheet compiled by the National Institute of Neurological Disorders and Stroke. |
| Yahoo! Groups: Anencephaly: Global Health Network support group open to anyone affected by anencephaly. |
| Yahoo! Groups: Anencephaly Blessings from Above: A Christian pro-life support group for parents those carrying to term. |