Gorham's Disease or Massive Osteolysis: Supporting those affected by this rare condition. From the AFAS Association. Available in English, French, and Spanish.
Jake Moore Memorial Site: Personal page about a young man who had vanishing bone disease. Offers a support forum.
Lymphangiomatosis and Gorham's Vanishing Bone Disease: Provides general information about the condition, a personal account, including pictures and x-rays. Also offers a message board.
Management of a Fracture in a Known Case of Gorham's Vanishing Bone Disease: Provides an introduction, case presentation, discussion and conclusion. Aimed at medical professionals.
The Lymphangiomatosis Foundation: Organization working on finding a cure for lymphangiomatosis and Gorham's disease through research, fundraising, and education.