Gorham's Disease or Massive Osteolysis: Supporting those affected by this rare condition. From the AFAS Association. Available in English, French, and Spanish.
Jake Moore Memorial Site: Personal page about a young man who had vanishing bone disease. Offers a support forum.
The Lymphangiomatosis Foundation: Organization working on finding a cure for lymphangiomatosis and Gorham's disease through research, fundraising, and education.
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