A Diary about Marfan's: Marfan's patients diary of the diseases events in her life. Includes a list of links.
American Heart Association - Marfan's Syndrome: Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
Canadian Marfan Association: Information, articles, events, a patient survey, and products. Also contains an article on Pharaoh Akhenaten who was believe to have the disease.
Central Ohio Marfan Support Group: Focuses on the support group with links to information about the disease. Includes a calendar of events for meetings.
Guide to Marfans Syndrome: Features forums, @marfanssyndrome.net email addresses and contains symptoms as well as guestbooks for both doctors and patients, a chat room and scheduled chats with professionals.
International Federation of Marfan Syndrome Organizations: A global information center providing links to Organizations around the world.
Life and Issues of Marfan's Syndrome: Personal site by which describes the pathology and gives a bit of advice.
Living With Marfans: This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
Marfan Association UK: The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
Marfan Support and Information: Support group in New South Wales, Australia.
Marfan Syndrome: A Question-Answer format page of information.
Marfan Syndrome: Comprehensive guide to this connective tissue disease.
Marfan Syndrome: Article from eMedicine.
Marfan Syndrome: Online chapter from The Merck Manual of Medical Information.
Marfan Syndrome Forum: Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
Marfan Syndrome: Does Diet Play a Role: Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
Marfan-List: Information about an e-mail mailing list. Also includes links to other online support groups.
Marfans Research Foundation: Irish charity with information on fund raising activities and the condition.
MFS Type 1 Fibrillin Gene: A comprehensive site including major resources listed as well as genetic information.
National Marfan Foundation: Providing accurate and timely information about the disorder to patients, family members and physicians.
Polish Marfan Association: General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
Questions and Answers about Marfan Syndrome: From the National Institutes of Health.
Slovak Marfan Association: The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
South African Marfan Syndrome Organisation: Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
Swedish Marfan Association: Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
The Mystery of Akhenaten: Genetics or Aesthetics?: A history of the pharoah along with theories applied to what he may have had, including Marfan's.
Theresa E. Pageau - A Memorial Tribute: A tribute to a patient with this disease accompanied by information and links related to donating.
Univ. of Washington - Marfan Syndrome: What the disease is and includes the impacts on daily life.
Yahoo! Support Group: Started by a person with the syndrome, this site offers support for any person with the disease as well as family of the person.