Alexander Foundation: Non-profit charitable institution that supports the funding and research of Kleeblattschadel Deformity, or cloverleaf syndrome, a type of craniosynostosis in which there is premature closure of bones of the skull.
Asher's Craniosynostosis Home Page: Describes a family's experience with CS. Includes information and links about the condition and its treatment.
Brynne and Craniosynostosis: Personal experiences of a family and a child born with craniosynstosis.
Cranio Online: For parents of children born with cranial deformities. Includes support group and FAQ. [English and German]
Craniosynostosis: Definition, description, diagnosis, treatment and support. Includes photos of patients and illustrations of the cranial sutures involved in this condition.
Craniosynostosis: Information sheet compiled by National Institute of Neurological Disorders and Stroke.
Craniosynostosis: Article from eMedicine.
Craniosynostosis: Article from the American Family Physician.
Craniosynostosis: Causes, pictures, and long term consequences.
Craniosynostosis, Endoscopic Strip Craniectomy: Information on surgical procedures.
Devin's Craniosynostosis: Devin was born with a condition called Craniosynostosis (Sagittal Synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada.
FACES: The National Craniofacial Association: Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders.
Michal's Story: English and Hebrew information on craniosynostosis based on the personal case of Michal Glanz from Israel.
Plagiocephaly Information Web: Information on the diagnosis and correction of abnormal head shape.
Sagittal Synostosis Homepage: Information (including details of genetic research) and support for people affected by this condition.
Tiffanni's Cranio Page: About a baby with the condition including post-operative photos.
World Craniofacial Foundation: Provides assistance for those in need of treatment.