| Alexander Foundation: Non-profit charitable institution that supports the funding and research of Kleeblattschadel Deformity, or cloverleaf syndrome, a type of craniosynostosis in which there is premature closure of bones of the skull. |
| Asher's Craniosynostosis Home Page: Describes a family's experience with CS. Includes information and links about the condition and its treatment. |
| Brynne and Craniosynostosis: Personal experiences of a family and a child born with craniosynstosis. |
| Cranio Online: For parents of children born with cranial deformities. Includes support group and FAQ. [English and German] |
| Craniosynostosis: Definition, description, diagnosis, treatment and support. Includes photos of patients and illustrations of the cranial sutures involved in this condition. |
| Craniosynostosis: Information sheet compiled by National Institute of Neurological Disorders and Stroke. |
| Craniosynostosis: Article from eMedicine. |
| Craniosynostosis: Article from the American Family Physician. |
| Craniosynostosis: Causes, pictures, and long term consequences. |
| Craniosynostosis, Endoscopic Strip Craniectomy: Information on surgical procedures. |
| Devin's Craniosynostosis: Devin was born with a condition called Craniosynostosis (Sagittal Synostosis) and underwent surgery (craniotomy or craniectomy), at the Hospital for Sick Kids in Toronto, Canada. |
| FACES: The National Craniofacial Association: Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. |
| Michal's Story: English and Hebrew information on craniosynostosis based on the personal case of Michal Glanz from Israel. |
| Plagiocephaly Information Web: Information on the diagnosis and correction of abnormal head shape. |
| Sagittal Synostosis Homepage: Information (including details of genetic research) and support for people affected by this condition. |
| Tiffanni's Cranio Page: About a baby with the condition including post-operative photos. |
| World Craniofacial Foundation: Provides assistance for those in need of treatment. |
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