Freeman-Sheldon Parent Support Group: Includes a members-only area with a bulletin board and pictures of afflicted children.
Freeman-Sheldon Syndrome - Wikipedia: Detailed description of incidence, nosology, inheritance, and condition management.
Geneva Foundation for Medical Education and Research: Several pictures of children with typical FSS characteristics.
National Craniofacial Association: Summarizes the child's likely needs, and has links to other resources.
Online Mendelian Inheritance in Man: Describes many case reports of FSS (also known as whistling face windmill vane hand syndrome), with references and a summary of the state of knowledge of the genetics.