A Parent's Account of Trichoththiodystrophy: A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.
About Andrea’s Disease: Personal history of a girl in France. [English/French]
Atlas of Genetics and Cytogenetics in Oncology and Haematology: Description and links.
Foundation for Ichthyosis and Related Skin Types: Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis.
Hair Shaft Defects - Trichothiodystrophy: Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.
Jeans for Genes Day: Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.
National Library of Medicine: Trichothiodystrophy, the synonyms, a summary and a list of the major features.
Yahoo! Groups : Trichothiodystrophy: Uniting parents and individuals whose loved ones have the Trichothiodystrophy Syndrome.
Yahoo! Groups : Trichothiodystrophy Family Contact: For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.