| NORD: Sturge Weber Syndrome: Offers a list of synonyms, a general discussion and further resources. |
| Sturge-Weber Syndrome Center: Clinical center dedicated to the treatment and study of SWS at Johns Hopkins Hospital in Baltimore. Find disease information, diagnosing, and treatment as well as details about the facility. |
| Sturge-Weber Syndrome Community: Organization for individuals and families affected by SWS. |
| The Sturge-Weber Foundation: A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research. |