Ben's Dream: Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
Bennett Children's Foundation: Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
Children's Medical Research Foundation: Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by the foundation.
Frankiepants: Personal site about a child with this disorder. Provides details about the condition.
Julia's Hope--The Sanfilippo Syndrome Medical Research Foundation, Inc.: A non-profit organization incorporated under the laws of the State of Nebraska to promote research toward a cure for Sanfilippo Syndrome and related disorders in children. Events, grants, and Julia's story.
MPS III: Information, including the causes, different forms, the inheritance and how the disorder progresses.
Special Child: Disorder Zone Archives - Sanfilippo Syndrome: Describes the disorder for the benefit of parents, lists characteristics of children with the disorder, and tells what to expect.
The Sanfilippo Children's Research Foundation: Canadian based charitable group founded by the parents of Elisa Linton.