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Top 20 Directory:
Top : Health : Conditions_and_Diseases : Genetic_Disorders : Fragile_X_Syndrome
See Also:

Sites:
  • Carolina Fragile X Project: A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
  • Conquer Fragile X, Inc.: Creating a virtual research center in Israel to find a cure.
  • Fragile X Association of Australia: Information on this disease, medical aspects, education, references, contacts and what's new in Australia
  • Fragile X Association of Southern California: Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
  • Fragile X Research Foundation of Canada: Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
  • Fragile X Syndrome: Single page on recognition of the condition in young children.
  • Fragile X Syndrome - Diagnostic and Carrier Testing: A Policy Statement from the American College of Medical Genetics.
  • FRAXA Research Foundation Home Page: Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
  • Living with Fragile X: One family's account of raising 3 children with Fragile X.
  • Maryland Fragile X Resource Group: A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
  • Online Support Group: Support group for Family's who are dealing with Fragile X Syndrome.
  • Pediatric Oncal: Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
  • The National Fragile X Foundation: Features information about the disease, its treatment, and inheritance.


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