Association of Birth Defect Children, Inc.: Charitable organization started by parents in 1982.
Children's Craniofacial Association: A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for people with facial differences and their families.
Cystic Hygroma: An article explaining this disorder and a support group for sharing.
Cystic Hygroma and Fetal Hydrops: From bereaved parents. Site has an explanation of cystic hygroma and more resources.