ACOR ListServ: Desmoid Tumor Group: Information about how to join the group. Also archives available.
Desmoid Tumor Research Foundation: Non-profit that funds research, increases awareness, and provides support for patients. Headquartered in Suffern, New York.
Desmoid Tumor Treatment Options: Opinion, treatment, surgery, therapy, and recommended reading.
eMedicine: Desmoid Tumor by Matthew J Trovato, MD: Overview of the rare benign fibrous neoplasms originating from the musculoaponeurotic structures throughout the body.
The Fibromatosis /Desmoid Tumour Site: Personal experiences of diagnosis and treatment for fibromatosis and the aggressive benign Desmoid tumor.
UCFS Children's Hospital: Desmoid Tumors: Description of the benign tumors, symptoms, diagnosis, and treatment.